Archive for December, 2009

Kidney Stuff

December 29, 2009

Just an update on the kidney stuff.  I’ve written all this before but you have to dig a little deep in the blog to find it so I’m going to repeat some of it.

My website www.mikeneedsakidney.com tells the story.  I have a genetic kidney disease, polycystic kidney disease, for which I’ll eventually need a transplant or dialysis.  Since transplants result in a better quality of life as well as a better success rate, that’s the direction I want to go.  Doctors say I’ll need one relatively soon.  I predict I’ll need one sometime in 2010.  You can track my progress on the graph on the site.  My symptoms aren’t that severe — just general tiredness so far.

A kidney from a living donor usually does better than one from a deceased one from the waiting list, though at some point you can’t be too choosy. Worst case scenario, if I don’t get one from a living donor, I’d simply go on dialysis for a while and then get one from the waiting list sometime between now and 2014.  There are some people that get by on dialysis ok and don’t find it that bad other than just feeling a little tired and sick, and they just continue on working at their normal jobs.  Others eventually go off dialysis and choose death instead because it’s so bad.  I don’t know how many people do that but some do.

All the stuff I’m doing — the website, the blogs, and the videos on YouTube (search on Mike Frandsen, coach mike, kidney transplant, dialysis, etc.), may seem a little over the top, but they’re designed to raise awareness for kidney donation.  In some cases some of the stuff is meant to be  funny.  My other site, www.coachmike.net, was also designed more to raise awareness — about methods of autism therapy than anything else. I believe in what I wrote on the site three years ago just like I believe in this.

I want to raise awareness not just for me but for others too.  I recognize that there are a lot of people worse off than me.  PKD isn’t as bad as some other problems that cause kidney failure.  There are more than 80,000 people waiting for kidneys and more than 11 of them die each day waiting.  I’m not on dialysis yet — dialysis can be extremely taxing and many people die on it.  So I usually say on the videos, blogs, and website, go to www.matchingdonors.com or www.kidneyregistry.org.  Already, over a thousand people have viewed my videos, blogs, and website.  Maybe a few of those people will eventually donate to people in the future when they know someone who needs a donation.

A lot of people aren’t aware of the basics of kidney donations and transplants so I suggest to people just going to Google and search on those terms and just spend five minutes reading up on it.  Search on “dialysis FAQs,” “kidney donation” or “kidney transplants.”

At the end of this process, I hope that people will know more about the need for and the process of kidney donation.  Donors only need one of their two kidneys as long as they’re in good health.  You can be out of the hospital in a day or two.  Of course, it does take a while longer to recover and get back to work.

Once the recipient gets a kidney, he or she has to take immuno-suppressant drugs forever to minimize the risk of the new kidney being rejected, but other than that, lives a normal life.  In fact, Sean Elliott and Alonzo Mourning both played in the NBA after having kidney transplants.

The Medici Effect

December 23, 2009

I sell used books.  One of them attracted my attention because of an unusually realistic-looking bug on the cover.  I thought I’d use it as a prop for one of the kids I work with who has autism.  I would pretend that the bug was biting me and then pretend to step on it.  Joking with kids with autism, especially that slapstick kind of humor, has many benefits including enabling them to learn through imaginative play as well as to think abstractly instead of literally.  Plus it’s fun.

Anyway, I decided to read the book. Turns out Franz Johansson was preaching to the choir.  I wrote some related ideas in September (2009/08/22/the-age-of-specialization/).  My thoughts then were that the world had become too specialized – that people stay in their comfort zones and don’t venture out, but that there are a lot of gains to be made from branching out.  Though most people specialize in a narrow topic, the world is also interconnected more than ever.

The Medici Effect got its name from the Medici banking family in 15th century Florence, Italy.  The Medicis funded creativity from a wide variety of occupations.  There was an unusual amount of creativity – sculptors, scientists, poets, philosophers, financiers, painters, and architects.  They broke down barriers between disciplines and cultures and learned from each other.  This became known as the Renaissance.  The idea is that intersections of different disciplines or ideas come together to create new methods of doing things.

Brainstorming can yield great results if an atmosphere of openness is encouraged.  I’d rather have one great idea and five bad ones than no ideas at all.  Too often, people say, “No, we can’t do that,” without even thinking about it, not realizing that one idea might lead to another, or that having ideas that don’t work are necessary in order to have ideas that work.  People pass judgment on ideas too quickly.  I’ve even attended meetings in which the leader is more concerned with keeping power than fostering innovative ideas.

It’s important to have a culture in which creative ideas are accepted.  If you are afraid to bring them up, you will continue to get the same results you’ve always gotten.  People are often afraid of change to the point where they would rather continue what they are doing though it might be largely ineffective, than to try something new and risk a loss but gain the potential for something great.

When jobs become too specialized, people are afraid of trying something new because consistency and conformity are rewarded, but they also lead to complacency.  Instead, shaking your mind free from pre-conceived notions leads to great gains.  Unique insights can be gained when people perform different occupations and exchange ideas.

I’ve always bristled at the notion that a person is what they do.  Ten years ago I wore a tie to work every day.  Now I not only always wear sweatpants and sweatshirts, but I usually wear the same ones every day.  People look at my resume and say, “Oh, you’re an IT (Information Technology) person.”  I was anything but that.  You could have taken a dart and thrown it at any one of 20 topics, and I could have written about any of them, most of them probably better than I did about IT, though I was still the best at what I did, and could walk into any institute at NIH tomorrow, blindfolded, having had a few beers, and with no training on the topic write better than anyone else there.  If I had written about animals, I guess they would have said, “You’re an animal person.”  The ability to change careers is a good thing, not a bad thing.  I guess some people have such tunnel vision that they see themselves doing only one thing so that’s the way they perceive others as well.

Ironically, a network of like-minded people can create obstacles because they all think the same.  Creativity lies in taking risks.  Comfort and security are tempting but become boring.  Challenge yourself and don’t take the easy way out.  Be open to new ideas, even if they seem to be unconventional at first.

I like the brainstorming philosophy but I’ve been burned by trying it in an overly conservative atmosphere.  Once I was working at a school for disabled children.  I thought I could use my 10 years of experience by having a little bit of freedom to try new ideas – by adding some spontaneity to the structure.  The principal wanted a “drill sergeant,” though, which I believe doesn’t always work for children with autism.  Anyway, I had a solution that would have resulted in the kids learning more than they otherwise would have, the principal would’ve been happy, and the parent of a child trying to get into the school would’ve been happy because her child would have gotten a much better education than he otherwise would have by having a certain one on one instructor.  The idea was too out of the box, though, so everybody gets what they had before instead of the potential for spectacular results.

Do not be afraid of change.  Embrace unpredictability.

Progress of Children with Autism

December 23, 2009

How much can children with autism learn?  It’s a question I get a lot, as a person who provides therapy to kids with autism to improve their academic, social, and athletic skills.  The answer is that all children with autism can learn.  Some make amazing progress; for others the progress is much slower.

I’m listing below a couple of examples of students who have made excellent progress in all areas.  They are an eight-year old boy and a seven-year old boy I worked with who both made amazing progress in a short period of time.  (The greatest example of improvement that I am aware of is a teenage boy who I have been working with for five years.  I’m going to compile a before and after list of skills and behaviors.  This kind of progress is truly inspiring for parents who have young children who are worried about what the future holds).

It’s always the child himself or herself who deserves the most credit for learning.  The parents, of course, also play a huge role.  Other than that, it’s a team effort, with teachers and home therapists making contributions to the child’s success.

Experience has shown that children learn best when subjects are integrated, rather than splitting them up into different areas.  I believe that in the future, a typical session will be run like this:  one-third academics and cognitive skills, one-third social skills and functional life skills, and one-third sports, exercise, and motor skills.

Each area builds on the others and makes all learning more effective so that the child can use skills in a natural environment.  Pathways in the brain are developed to work in conjunction with each other, not in separate areas.  Interventions should be meaningful to the child, rather than just memorizing information.  Kids aren’t robots and neither are the people who work with them.  It’s not the number of hours that are spent learning.  It’s how efficient those hours are.

Area Progress for a high functioning 8-year old boy with autism during a 7-month period
Math Improved ability in:

  • place value
  • addition, subtraction and early multiplication
    • addition:  he improved from mastering sums of 9 to sums of 14
    • subtraction:  he improved from mastering 5 –x to 12 – x
    • multiplication:  he improved from nothing to up to mastering 3 x 4
    • Expanded notation
    • Word problems – he was terrible at them at the start, and by June he had mastered several different types.  He learned to draw to find answers to problems.
    • Learned the basics of fractions
    • Addition carrying the one
    • Counting mixed coins
    • Skip counting
    • measuring
English
  • Learned how to do opposites
  • Improved reading comprehension (I had time to work on this with him 20 min. a week.  The other company had 20 hours a week.  He would have made more improvements with me with the same amount of time).
  • Improved on capitalization.
  • Improved on spelling.
Maps Improved ability to find spots on the map.  Learned directions better than before.  Learned most of the states, which he didn’t have before.
Time Improved ability to tell time by counting by 5’s on clock.
Sports
  • The neighborhood kids respect him a lot more now than before because he can play sports a lot better and can handle his emotions better.
  • He had major tantrums at the start but improved a lot.  Showed him how he looks through video, helping him see how others see him.
  • He became very competitive, really wanting to win.  At the start he didn’t care if he won.
  • He learned to play defense where his role was to stop the other team so he became less reliant on needing to score to be happy.
  • He understood the rules much better in soccer, hockey and basketball, than before and he improved in his knowledge of football and baseball though he still has a long way to go.
  • He became interested in local pro sports after reading about them on the web and going to the Freedom game.
  • Learned not to run into the street after the ball.
  • Ice skating – though he can’t glide, the first time he fell 100 times, the most recent time he fell less than 10 times.
  • We did exercises based in yoga, relaxation, and balance to help him focus.
  • Most of the sports we did happened from April through June – we accomplished most of this in three months.
Emotions
  • He learned that mistakes help you learn.
  • He can self-regulate better by taking deep breaths, counting, exercising, or talking about it.  This is a very important skill to have.  One that many kids cannot master.
Strangers
  • He knows he can’t sit in the lap of anyone except his parents.
  • He still has a long way to go but has learned that you can’t say hi to adults who you don’t know.
Pretend and Abstract Play Improved spontaneity, imagination, and creativity by using jokes and pretend stories.  He improved his ability to make up stories and use symbolic play.
Games Improved ability to sit down and play scrabble.  He had a terrible temper at first but now can play an entire game somewhat independently.  Improved spelling through scrabble.  Introduced other games.
Social skills
  • Improved social skills through play dates.
  • Talked about bullying
Overall He had his best session ever on 9/21.  We had a lot of momentum and things were only going to get better.

Area Progress for 7-year old boy with autism with severe developmental delays including language
Overall He has made a lot of progress.  I have only been working regularly with him doing two-hour sessions for 3 months.  Before then we did 1.5 hours sessions sporadically.
Books He is able to sit for 15 minutes at a time reading books with me and is interested in looking at books (colors, foods) by himself.  Before he would not sit still at all.  He can now read different books with help, looking at words instead of just pictures.  Once we read 7 books back to back.
Flashcards Here are words he has mastered from my flashcards or bean bags.  They were not on the Verbal Behavior Team’s list of words he’s mastered (I realize he may have known a few of these before, especially the foods) – desk, table, chair, TV, fridge, wall, door, sink, soap, mirror, stairs; crackers, chips, salsa, nuts, onion, goldfish, beans, taco, broccoli, cheese, carrots; triangle, rectangle, square, oval, circle; three, four, five, six, seven, eight, nine, ten; Mom, Dad, his name, his sister’s name; sleepy, (he hasn’t learned sad, mad, happy, or sick, but I’ve made those flashcards because they are very important).

I also reinforced many of the words from the VBA team’s list by having him review flashcards.

Though he can read the words “Mommy,” “Daddy,” etc., he’s having trouble associating them with the pics on the flashcards, showing how important it was to make those flashcards.

Typing He wouldn’t do it at all at the start.  Now he has no problem sitting for 15 min. The work paid off as he knows where the keys are now.  Typing has helped him read his name and understand that the answer to how old he is is 7.  It has helped him learn to read Mommy, Daddy, his sister’s name and his name.  He has taken my finger and guided me to the letters before, showing joint attention, which is crucial to learning. Typing is NOT meant as an alternative method of communication for him, but it will help him spell and read words, then phrases, then sentences, and will ultimately help him speak better because he will understand language more.  Typing is one way to help kids generalize language – to learn words in several different ways rather than just reading sight words.  It also helps with fine motor skills.
Intraverbals In Aug. he mastered saying his name and 7 in response to “What’s your name?” and “How old are you?” but he lost them because of confusion with what VBA program has done.
Soccer He can kick back and forth on the grass. He can dribble the length of the field and then kick it hard into the net.  He can kick it into the goal over and over.  During the last two sessions I had him kicking back and forth with his brother, which is a huge milestone socially.
Basketball He can now shoot from several feet away rather than just dunk.
Trampoline He can play catch while jumping, kick the ball back and forth while on the trampoline, and stop and do imitative exercises, which he could not do before.
Imaginative and Pretend play He has a much stronger interest in stuffed animals now.  At first he had no interest.  Then he would smile and laugh and say “frog” or “bug.”This is very important to learn how to play and think abstractly.
Oral Motor He learned to imitate by using his tongue and lips.  In June he was able to blow bubbles but before he couldn’t.
Handwriting He is getting better at tracing numbers and letters.  Before he couldn’t do it at all.  He can’t do it independently but he in some cases is doing part of it himself.  He shows more interest in it.
Math He is very interested in counting though he loses track/needs help after about 15.  He has started addition.  His attention span has increased during math.
Numbers and shapes He has completely mastered numbers 1-10 and shapes with beanbags.  Determined he may be partly color-blind.
Spelling Spellmaster – He has chosen the right tiles to spell certain words. Using different ways to read is helping generalize (flashcards, books, typing, spellmaster, etc.)
Other He has been very engaged, with lots of two way interaction.  The rapport we have is very important to learning because kids will learn more when they are motivated and having fun.  He shows a lot of joint attention: Joint attention refers to the propensity of a child to engage another’s attention to share enjoyment of objects or events. Children display joint attention skills by initiating bids to others to pay attention to what they are attending to and by following the line of visual regard and point gestures of a social partner (Mundy & Thorp). Thus, children both initiate and respond to joint attention bids.

Joint attention behaviors represent a critical area in typical development. Joint attention skills have been found to be concurrently related to receptive and expressive language skills among typically-developing children. In addition, research indicates that joint attention is important for the development of a host of other, later-emerging, skills, such as more complex expressive language, symbolic play, and theory of mind.

Initiating joint attention, shared engagement, two-way interaction, connecting on an emotional level is how kids learn – this isn’t just from Greenspan but this is well known – this is taught at Johns Hopkins – and the relationship a child has with the therapist is very important to learning.  His words are very emphatic after we do something he enjoys.  He shows a lot of enthusiasm, also helpful to learning.  He has the ability to go with the flow.  These are all elements of RDI that he has shown for the past four months.  We have been doing RDI type games in a natural environment already.  He has not cried significantly with me since 6/21.

Health Insurance Fiasco, Part Two

December 23, 2009

Below is an example of why having a health insurance plan such as the one federal employees and members of Congress have would simplify things for patients and make coverage more fair, rather than allowing people to have the quality of their health insurance based on what type of job they have or who their employer is.

A couple of months ago I called CareFirst Blue Cross/Blue Shield’s Maryland Health Insurance Plan to ask what they covered for kidney transplants.  I had previously talked to the Financial Coordinator at a hospital who said that MHIP/BCBS does cover transplants – that you don’t have to get Medicare.

First, the person on the line at MHIP/BCBS strongly emphasized that a kidney transplant would have to be pre-approved in order to be covered.  I guess there are a lot of people who get kidney transplants who don’t need them. Maybe she thought I was trying to get the benefits of a kidney transplant when it wasn’t really necessary.  She was also kind of mean, which seemed strange.  Customer service reps are supposed to be nice, or at least neutral.

Anyway, I found out that MHIP/BCBS covers 80% of the allowed charges for in-network surgeons and 60% for out of network if you haven’t fulfilled the $1000 out of pocket maximum.  That’s different than the deductible.  If you have satisfied the out of pocket maximum, it would be covered at 100% of the allowable costs for in network doctors (I still don’t trust this).  They couldn’t tell me how much was allowable, though.  I asked a hypothetical question – what if I had fulfilled part of the out of pocket maximum – say $700 – then would they apply the first $300 of the costs of the transplant to the out of pocket maximum and then cover the rest?  She refused to answer that and just said that in order for it to be covered I had to have fulfilled the out of pocket maximum.  She said if I hadn’t fulfilled the out of pocket maximum, the benefits would be covered at 80% of the allowable charges.  I again asked what if I had fulfilled most of the out of pocket maximum – would the difference be taken out of the first few hundred dollars of the transplant costs, so that the rest of it would be covered?  For example, if the transplant costs $100,000 (it costs a lot more, but let’s say $100,000 for simplicity), and I had fulfilled $900 of the $1000 out of pocket maximum, would they apply the first $100 out of the transplant cost to the out of pocket maximum, so that the $99,900 remaining cost would be covered?  She and a second person refused to answer, though they implied that it would only be covered at 80% of the allowable charges if I hadn’t fulfilled the out of pocket maximum.  However, a third person did tell me that yes, the difference would be applied to the out of pocket maximum.  I had asked to speak to a supervisor, but I’ve probably asked about 15 times in the last year and a half and only once gotten to speak to a supervisor.

If you really think about it, an out of pocket maximum is just that – the amount that one has to pay out of pocket and no more – but I wanted to make sure.  I’ve had a lot of problems with this insurance company in the past.  (Just a couple of weeks ago I called to see if they received my medical claim.  The representative said it would be 30-45 days from the time I mailed it to the time that they could tell me whether or not they received it – not whether or not they accepted it or when I’d get the money.  So if they didn’t receive it, I could only find out that they hadn’t received it four to six weeks after I sent it).

I’m not even going to bring up the prescription medications.  This is confusing enough.

Then I found out that all the information above about what is covered for the transplant was irrelevant, because MHIP/BCBS requires you to use Medicare for transplants if you’re eligible.  MHIP/BCBS never told me this.

I called Medicare and got through after several failed attempts.  When I did get through, the person didn’t know if transplant recipients had to get Medicare.

Then I called another hospital’s Financial Coordinator and asked how much better would it be if I had a job with federal insurance.  She said she didn’t know because there are so many different federal plans.  But as far as I know – there are only two federal plans – Standard and Basic.  Each one covers virtually 100% of everything with just copays, and the process is transparent to the patient, without a lot of confusion and applying to different plans.  But she said she wasn’t familiar with them.  That was hard to believe because these hospitals do hundreds of transplants a year and I’m sure some of the patients are federal employees.

Then I called the social worker at the same hospital.  She said that the Financial Coordinator at the previous hospital was wrong that MHIP/BCBS covers kidney transplants, because MHIP/BCBS requires patients who are eligible for Medicare to take Medicare.  Medicare is automatically offered to anyone who gets a kidney transplant.

Medicare Parts A, B, and D seem to cover 80% of everything while a Medigap policy would cover most of the remaining costs.  I estimate that the total costs would be about $600 a month, about four times as much as the costs that it would be under federal insurance.  But it’s not the money that is the biggest issue – it’s more applying for different plans and dealing with people on the phone that could be stressful either right before or right after a transplant.

Medicare only lasts three years for transplant patients.  After that they consider that you are fine even though you need to take immuno-suppressant drugs for the rest of your life.

Luckily, I live in Maryland, which through MHIP/BCBS offers health insurance to people with pre-existing conditions.  But not all states have programs like this.

I believe the reasons that many people aren’t for the health care reform bill in Congress include the fact that even though tens of millions of people don’t have health care, a majority of people do have health care.  Also, while many people are discriminated against on the basis of pre-existing conditions, most people do not have pre-existing conditions.  Should people who have insurance care about those who don’t?  Should people without pre-exising conditions care about those who have them?  I believe so, but not everybody does.   In addition, the insurance companies are big businesses, so the people who work for them and invest in them want to see them continue to make big profits.  Finally, people don’t like change – they would almost rather be in a worse situation than a better one because their fear of change is so great.

In retrospect, maybe Obama and other Democrats should have had a more clear message, and listed about three major points, and used those points over and over in speeches, because the American people like slogans and soundbytes.  For example, they should have emphasized the following simple points (we need simple – let’s be honest, our attention spans aren’t that long):

1.  Many people don’t have health care.

2.  Insurance companies discriminate on the basis of health.

3.  If the money from the profits the insurance companies make were instead used for medical care and research, people would be healthier.

They should have also used real world examples of people affected.

Health Insurance Fiasco

December 23, 2009

I’ve had some interesting conversations with my insurance company – Blue Cross Blue Shield’s CareFirst (or should I say CareLast) Maryland Health Insurance Plan.

Here are just a few of the issues:

7-15-08:  I fill out forms to apply for health insurance as my COBRA policy is running out.

8-1-08:  BCBS says I can’t get insurance until they document that they received a proof of residency, but they won’t say whether they received it or not.

8-5-08:  I say I’m worried about an insurance lapse but they say they won’t check whether they received fax and won’t tell me if or how much I owe or who to send the money to.

8-8-08:  They say they’ve received everything and will send me a payment letter.

8-9-08:  I receive a letter saying they need verification of address and certificate of insurance, though I faxed them two weeks earlier.

8-20-08:  I call them and they say they’ve received everything and I should have gotten a payment letter.  The representative says she will call me back today.  I make her promise to call me back but she doesn’t.  I call someone else but get put on hold for a half hour and disconnected.  Then I call again and they say I need proof of residency.  For the fifth time in three weeks, I ask to speak to a supervisor.

8-21-08:  They say I still need proof of residency.  Then I speak to someone else and she says everything is in.  My hospital Financial Coordinator calls them and says the ID number they’ve given me doesn’t exist.  The Financial Coordinator says she has been on the phone with them a long time.

8-22-08:   The social worker at the hospital suggests I go off the transplant waiting list until I get good insurance.

9-3-08:  I call MHIP/BCBS and ask why I should have to pay for August when I didn’t have insurance until the end of August.  They say write an appeal, which could take 30-45 days for the results.

9-4-08:  I ask to speak to a supervisor but am disconnected after 20 minutes.

9-08 to 10/08:  I send in a medical claim.  MHIP/BCBS says they need medical documentation.  I call doctor’s office who says they’ll send it.  I call MHIP/BCBS who says they didn’t get it.  Told doctor’s office to send it.  They said they would.  MHIP/BCBS says they didn’t get it.  Called and emailed doctor’s office saying mail it to the address as well as to me and call MHIP/BCBS.  MHIP/BCBS refused to tell me the fax number and refused to tell me what information was needed (I guess they don’t like dealing with patients).  The MHIP/BCBS automated system keeps hanging up on me.  Two people tell me they had no fax machine and didn’t receive any information.  The next day two different people told me they received a fax on the 14th.

I finally did get reimbursed.

Eastham’s Exxon and Auto Centro: The Best

December 23, 2009

I had a flat tire the other day.  I took my car to Eastham’s Exxon on Wisconsin Avenue in downtown Bethesda.  They patched it up and had me on the road again in 10 minutes.  That was great because they could have easily said they had people in front of me but went ahead and did mine fast.  It’s a concept taken straight out of David Allen’s book, “Getting Things Done.”  The idea is that even if you have items on your to do list that are more important than others, if you can get something done quickly even if it’s less important, go for it and get it out of the way.  Anyway, that was good service.  They also could have said I needed a new tire and I wouldn’t have known the difference.

Another great place is Auto Centro in Rockville.  Hidden in an industrial park about a mile behind the Rockville Metro, they always do great quality work.  They have the double check from “Consumer Checkbook” magazine for quality and price. Paulo and the crew will do a great job and even find a car for you to buy if you need one.  I’ve been going there for 15 years.

Sorry I’m Not Fat

December 23, 2009

Sorry I’m not fat.  I’m 6-5, 210.  Everybody thinks that’s too skinny but it’s actually right in line for the correct Body Mass Index (BMI).  Doctors say it’s the perfect weight to be for my height for optimum health.  Of course I’m always trying to gain muscle and lose fat.   But I think that our American culture celebrates people who are overweight.  Since so many people are obese, a person of average weight is perceived to be skinny.  6-5, 210 is normal in Europe.  Here, it’s a little thinner than average simply because there are so many people who carry extra pounds.

I have a couple of theories why we are so fat.  The first is football, our national pasttime.  Don’t get me wrong, I’m a big NFL fan.  But most NFL players, as well as many other professional athletes, take human growth hormone (HGH) to get bigger. I also think the football stereotype is celebrated.  Look at football coaches like Maryland’s Ralph Friedgen or the N.Y. Jets’ Rex Ryan.  They are very obese but I guess it’s ok for a coach.  You’d never see a hockey, soccer, or basketball coach looking like that.

Another reason for why we are so fat is because our diet is full of sugar, processed food, and fried foods.  So it’s normal to be 80 pounds overweight here.  Luckily people are slowly coming around. It’s not just the consumers’ fault.  Big corporations make the unhealthiest food the cheapest, so that’s what many people are forced to buy.

Jhoon Rhee: “Nobody Bothers Me! Nobody Bothers Me Either!”

December 23, 2009

One of the greatest commercials of all time was the Jhoon Rhee “Nobody Bothers Me” commercial of the late 70s and early 80s. Anybody who grew up in the Washington, DC area during this time probably still has the words memorized.  Nils Lofgren did the song (Nils, of Bruce Springsteen and the E Street Band fame, also did “Bullets Fever,” another local classic).  The commercial (see http://www.youtube.com/watch?v=n7PEMGuA6tw) was one of those commercials that was just played all the time.

Legend has it that the cameraman or producer suggested that Tae Kwan Do Grand Master Jhoon Rhee’s son and daughter do the ending to the commercial, they did, and the rest is history.  I got to meet Jimmy Rhee, Jhoon Rhee’s other son who was not in the commercial earlier this year.  We discussed strategies for kids with autism and ADHD.  Rhee’s website is http://www.smartcoach.us/.  He does coaching based programs for kids with ADD.

Back to the commercial – there was just something about it.  It was great but it was also cheesy.  It was definitely a part of the history of Washingon, D.C. 30 years ago.

When you take Jhoon Rhee self-defense, then you too can say

“Nobody bothers me.  Nobody bothers me.”

Call USA-1000.  Jhoon Rhee means might for right!

“Nobody bothers me.”

“Nobody bothers me either!”

Helping Kids (Autistic or Typical) Regulate Emotions

December 21, 2009

Here are some strategies that are good to teach children to handle their emotions.  These can work for kids with autism, who have a hard time regulating emotions, as well as for neurotypical children.

1.  Validate their feelings.  Don’t diminish what they say by saying they should not be upset.  Tell them you understand they are upset and that it’s normal to be upset.  Identify with them by saying that everybody feels badly sometimes – even adults.

2.  Give them strategies to self-regulate their emotions.  Examples include having them:

  • Take deep breaths.  Have them breathe into their hands or use a windmill or a leaf.
  • Count to 10 or 20.
  • Talk about it with a parent, teacher, or peer.
  • Exercise

3.  Use a video camera to tape them complaining about doing an activity and also tape them acting appropriately.  Show them both versions so they can understand how others perceive them (theory of mind).

By the way, if anyone has any other ideas, feel free to contact me (contact information is at http://www.coachmike.net).

Chris Klug Foundation for Organ Donor Awareness

December 20, 2009

The Chris Klug Foundation (http://www.chrisklugfoundation.org/) for organ donor awareness held its fourth annual Summit for Life event December 12.  More than 350 people climbed 3,267 feet to the top of Aspen Mountain to raise awareness for organ donations.

Klug is a World Cup snowboarder who had a liver transplant nine years ago.  Klug won a bronze medal in the 2002 Winter Olympics in Salt Lake City, becoming the only organ transplant recipient to compete in an Olympic Games. Klug is the author of To the Edge and Back: My Story from Organ Transplant Survivor to Olympic Snowboarder.

Klug also had a sixth place finish in the 1998 Winter Olympics in Nagano, Japan, four World Cup victories and five National titles.  Klug still competes internationally and plans to be at the 2010 Winter Olympics in Vancouver, Canada.

Me with Chris Klug at the 2009 Johns Hopkins Transplant Conference

I had a chance to meet Klug at the Johns Hopkins Annual Transplant Conference last summer.  I was also supposed to meet with a nurse after the conference to discuss details about paired donations, but I left early to get back to one of the kids I was supposed to work with.  Next time, I think I’ll stay at the conference.

See a video of Klug training at http://www.youtube.com/watch?v=McuXm3peDV8.

My website is www.mikeneedsakidney.com.


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